Self

Update, what’s going on. Part 1.

Placeholder ImageIt’s been a long time since I last updated you on what is going on in my life. It’s still rough. E finished his seventh grade year in public school. He could not get past only 15 minutes in a single math class. He has gone from the advanced group to the below average one. This is a kid who is extremely smart. Who had A’s and B’s before and now barely gets C’s. Since he’s not in class he doesn’t learn everything he needs to. So we’ve been paying for a tutor twice a week. It’s financially painful.

As school ended we met with his teacher and case manager to plan for the upcoming year. We made a list of things we wanted to improve for next year. I only hoped we could get it together by the end of 8th grade. If not, we were going to have problems. I was not only concerned about his anxiety but also his education and social development.

We were at this point taking him to an eating disorder clinic for ARFID twice a week. After several months of going the clinic told us that we didn’t need to come back. They didn’t feel Erik’s problems were the result of ARFID (Avoidant Restrictive Food Intake Disorder) but more of a sensory issue. So we will have to try Occupational Therapy and Food Therapy in the future. I have a lead on some places to take him. I am going to hold off until we get his anxiety under control. It’s just too much. The anxiety and depression come first. They overwhelm everything.

In the summer E’s therapist has decided to not do talk therapy anymore and concentrate on his extreme social anxiety. They are going to do exposure therapy. She thinks if he can get a handle on his social anxiety his overall anxiety and depression will get better.  I am glad she is willing to try something new. This doing “challenges” is what helped me to get over anxiety myself.  Knowing that, my husband and I have kept him going places to prevent him from being agoraphobic.

His Psychiatrist says he doesn’t know what else to do for meds.  He’s basically on it and at the max dose for a child.  I still think it should be increased, but I don’t own the prescription pad.  He sees his therapist weekly and his psychiatrist every two months.

We have been having E tutored twice a week during the summer.  We found a tutor through Wyzant app and website.  (No ad, that is just what I did.)  I didn’t have the faintest clue how to find a tutor and this site is really helpful.  He is tutored in Math and some English.  Sometimes he had a good tutoring session other times its a disaster based on  his anxiety. It’s hard for us as it’s a cost that we haven’t anticipated.  I am also tutoring him in History and Life Science.  I was hoping to be done by the end of summer but it may have to go into the new school year starting in September.

This summer we have also been looking for alternative schooling for E instead of the public schools.  The public schools here are very good.  Academically, we have no complaints.  In dealing with them for my son’s illness and disabilities, there is a lot to be desired.   Granted he is one kid among thousands in the district but this is what we pay our taxes for right? We figured that we would give him one more year to turn it around.  He will be in 8th grade this year.

However, after the tour of one of the schools I felt really good about it.  They have a lot of kids with severe anxiety attending.  It was nice to not have to explain E’s situation every time.  Someone “gets” it.  We decided that he would benefit from attending immediately.  Luckily there was a spot left for him.  So we didn’t have to wait.  We have been filling out paperwork and submitting lots of stuff.  Finally, we found out that E was excepted to the new school.  I know he will be nervous, but hopefully this is the thing we need.

The school never has anymore than 32 students.  Depending on the year the total number fluctuates between 25 to 32. Each grade has 2-4 students. I know it will be rough.  I hope this helps and he makes friends. The options that are left are not that great.  If they are really options at all.

I will continue updating you on what else is going on in Part II.

 

 

 

Self

Update

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It’s been awhile since I have updated everyone on my life.  Honestly, it still feels out of control.  It’s like I almost don’t have my footing.

As I wrote before, I have just gotten over a severe case of pneumonia over two months ago.  It was horrible.  I still don’t feel as if I have recovered from it.  In the past two months I have gotten a lot of stomach bugs and one regular cold.  Ah Winter, the season that keeps on giving. I just haven’t felt right since. I was pretty rundown before the pneumonia.  However,  this feels different.  I think since I am still under a lot of stress my body just can’t take it.

I have had to miss so many appointments and cancel out on people in the last few months. I really hate doing that.  Appointments are so hard to come by. I tried to avoid  same day cancellations.  I try to at least get the provider their tip so they don’t lose out on money.  Fortunately, I only had one or two that I had to do that way.

I am trying very hard to get back to feeling better.  More water, eating better and trying to get out of the house.  I have also spent more time doing self care.  Going to bed early, getting a massage and other things. I still have a long way to go.

My son is still at the same point as he was at the last update.  He can only manage about 15 minutes in one normal class.  I have no idea what to do next. His therapist and I are challenging him to do one extra minute a day. So far he hasn’t done it. If he can do one extra minute a day, he will be up to an hour at the end of the year.

In addition to his mental health therapy I have started to take him to an eating disorder clinic.  It was the same one he went through last year. So I returned with him on an outpatient basis.  He goes to a dietician at night and family therapy in the afternoon. So far I’ve gotten him to eat a banana but not much else new.  Apple no, Tater Tots no, and other things?? At least he is crazy about Ramen.  He eats about 4 bowls a day.  The only problem is he eats noodles.  What I need help with is fruits and veggies of which he eats none.  I’m not 100% certain of the diagnosis of ARFID, as an eating disorder.  The also want me to start seeing and OT again.  They are going to try and get referrals for me for my son.  Another provider to visit?  I don’t know.  He saw an OT for over a year a few years ago. It didn’t do any good.  Would a different OT do anything?

He’s seeing a tutor twice a week on the weekends.  He isn’t in math class long enough to understand the teaching.  However, everything he turns in is late because we have to wait for the tutor. I have purchased a Life Science and History textbook to help him understand what he missed in the school year this summer.

I see my son getting left behind. I don’t know what to do.  He gets upset and goes through crying spells and anger at this anxiety. I don’t know what else to do.

I have gotten to go somewhere for fun twice in the last six months.  I went to a flower show which was cute.  Then I also saw a decorator home open for charity.  I think I need to get out more!

 

Self

What Are Anxiety Disorders or Panic Attacks?

 

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I write a lot about anxiety and panic attacks.  It occurred to me that few people may know what the definitions and symptoms are. Even definitions since I was first diagnosed have changed.  While the wheel in mental health has not been reinvented it has been refined.  It evolves, and continues to evolve as modern medicine makes new discoveries about the brain.

Anxiety Disorder is a constant, excessive and nonstop worry or worries that occur almost all day, every day.  It will interfere with you day to day life.  Physically you can experience symptoms such as stomach aches, vomiting, feeling like you are going to throw up, sore muscles, tiredness, anger, dizziness and many more.

Anxiety Disorder can include panic disorder/panic attacks,  agoraphobia, social anxiety disorder, and other forms of anxiety.  Anxiety has many related disorders and can coexist with other mental and physical illnesses.

Everyone experiences anxiety right?  Just tough it out, right?  Wrong, any type of Anxiety Disorder when experienced is more persistent,overwhelming and debilitating than normally experienced anxiety.  It interferes with you daily life. You get up to leave a crowded theater even when you really want to see the show.  You can’t fall asleep no matter how tired you are.  You ruminate on certain or all worries to the point of inaction no matter how remote or silly they seem to others. You have physical ailments that begin to appear and cannot be resolved by normal medications. You begin to avoid places because you start to relate them to feeling awful.

The cause of anxiety is unknown.  It can be a variety of factors from biological, genetic, experiences, environment and more.  For me, I believe that it was a combination.  Panic Attacks, Generalized Anxiety Disorder and more run in my family.  While my paternal grandmother was not formally diagnosed I believe she had it.  My father was diagnosed with anxiety and depression.  I was diagnosed with Panic Disorder and others, and my son was diagnosed with General Anxiety Disorder. Then I believe the way I was raised also contributed to my anxiety as it added stress to an already stressful life.

I made a vow to raise my son differently and I did.  To watch him get it and go through it nearly killed me and triggered my own anxiety again.  It was devastating to me.  “What did I do?”, I thought. What didn’t I do?  The thing is nothing I could have done, would have prevented my son from getting it due to our genetic predisposition.  What I can effect is how his treatment and support is.  How he handles what his disorder is doing to him.  That’s because Anxiety is a disorder/disease just like cancer, or diabetes.  Now before you go off telling me cancer etc are different, understand that I say this because many people believe that mental illness is a character flaw and not a medical condition. We should be able to think it away.  There are a few that can. Most people need therapy and lifestyle changes.  Some also need those and medicine.

Anxiety effects every relationship you have.  It effects every opportunity that comes your way.  For me, I lost over four years of my life that I can’t get back.  You need all the support you can get.  Overcoming your own mind is one of the most difficult things a person can do.

Then there is the fear of what other people think.  Will they think that I am crazy?  Will  they stop wanting to be around me?  What if I am discriminated against. Recently in the news a member of the ground crew in Seattle stole a small jet, went on a joy ride and crashed it.  On several different news channels they were asking if ground crews were screened for mental illness.  It made my heart sink.  First, we have no idea if this man had mental illnesses or not.  So why speculate.  Second most people with mental illness do not harm themselves, fewer harm others. There are already some things that those with mental illness cannot do.  One of my greatest fears is the information age and mental illness.  Where someone can with the touch of a button get your medical history and use it to disqualify you from a job or community.

How do you treat anxiety?  It really depends on the individual.  Each person must have their own type of treatment.  Which is how mental illness differs from other illnesses of the body.  One of the more successful treatments is CBT or Cognitive Behavioral Therapy. This type of therapy involves changing your thinking and habits to manage your anxiety.  In addition, medication can be prescribed to help you control and minimize your anxiety. What medication and how much depends on each person. It’s important that you maintain contact with your medical providers to ensure you get the best care possible.

I myself have been on so many medications.  Some worked better than others. Some side effects are worse or better. Only one medicine did not work for me.  I’ve been changed around many times.  Sometimes, I can’t keep track of everything I’ve been on. This is the hardest part of a disorder.  Finding the right combo of drugs to use.  If you are at this stage please keep the faith.  It may take an extended period of time to find the right combo of medication.  Then again, you may not even need meds or you can get it right on the first dose!

Panic Attacks are acute, intense instances of fear.  They can last for a few seconds to a few hours.  The often can come out of the blue, but some also are triggered by circumstances.  The fear is so intense that it can cause you to flee the area, feel like you are having a heart attack or a break down. You feel as if your body and mind operate separately. The biggest part of these attacks are learning to regain control of you body again.  It involves relaxation, deep breathing and other techniques to bring down the intensity of the reaction.  Short lasting medications are also used for certain patients to take the edge off the attack.

For more information or diagnosis, please contact your doctor for a referral to a mental health professional.  You can also check out the website of The Anxiety and Depression Association of America at http://www.adaa.org, Web MD, or NAMI The National Alliance on Mental Illness at http://www.NAMI.org .

This article is an opinion piece and not to be used for self diagnosis or in place of advice from a medical professional.

 

 

Family

Suicide, My Son, Anthony Bourdain, Kate Spade and me.

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I’m exhausted.  Completely exhausted.  Physically, Mentally, and Emotionally exhausted.  I’m so worn out that I have trouble getting things done at the moment or going places.  I pick the most important thing, do it and let the rest go.  I only have so many spoons to give.  I can’t sleep, but I need to.

As many of you know, my son has had a great deal of problems this academic year.  His problems are not of the intellectual side.  He knocks that out of the park.  It is of the mental illness kind.  It runs in my family.  When I noticed his issues I quickly got him help.  I had hoped to block the huge problems I had when I was young and going through this. I was going to be there for my son.  I was a completely different parent that what I had.  Yet my son went through everything that I did.  He is still struggling.  I have done everything I know how to do and then some.  Still and my best intentions and actions are not enough.  It is a long slow climb, just like it was with me.

When I first heard about the death of Kate Spade I was sad. I studied Fashion Design.  I knew Kate’s story (professionally speaking) and loved her products.  I felt awful for her family and for her.  I understood her profound sadness.  Her soul had died a while ago I guess, and she made sure her body matched her soul.  Harsh?  Mean? Insensitive? I’m not trying to be. When you are depressed, suicidal you truly believe that your death is a good thing.  I’m not kidding.  People think suicidal persons are selfish. On the contrary, I have found the exact opposite.  People who go through this mental illness called depression or suicide think a lot.

They think that the world would be better off if they were not apart of it.  The wouldn’t be in pain anymore, and their friends and family would be happier.  You may be saying “How could anyone think that?” I would say to you, “How could you not think that?”  They (the depressed and sad) hear everyday:

“What do you have to be depressed about?”

“Lighten Up”

“It will pass.”

“You need to get out of the house.”

And so on and so forth.  Why wouldn’t you want to leave this life.  Everywhere you turn, you are told how you should not think or feel how you do.  Your damaged and you’re making everyone else miserable.  Solution?  Stop your pain and everyone else’s.  That’s what a depressed person thinks about.

Anthony Bourdain was a shock.  I had just watched his TV show the night before.  My husband and I must have discussed it for an hour afterwards.  When my husband tweeted me about Anthony Bourdain, I didn’t understand at first.  So I looked on my news feed and there it was “Anthony Bourdain is Dead.”  At first, I thought car accident.  Maybe heart attack.  Never suicide.  A day later, there it was, suicide.

Wow, just wow. If anything, he seemed to have a great life and all his shit together.  If a guy like Anthony Bourdain can’t handle it, how can the rest of us? I’m sure the same can be said of Kate Spade. This is why his death was so shocking.  He has everything (it seemed) that I wanted and it wasn’t enough.

Bourdain had the respect of everyone. He had talent, intelligence, money, looks, skills, recognition, family, friends, and more.  My heart aches for Bourdain’s and Spade’s kids.  Their whole circle.  I know that they were loved and they loved all those people back. Sometimes love isn’t enough.

I was envious of all the places and things Bourdain got to do.  He spoke to amazing people, and ate great food. I tried to keep all the coverage of their deaths away from my son.  I didn’t want to give him ideas of new ways to end his life. My son is 11. I am sure many are thinking what is his deal? The thing is, it doesn’t matter.  It didn’t matter what I thought when I went through suicidal ideation, it doesn’t matter what my son thinks, what these two celebrities thought.  Thoughts don’t matter.  Actions do.

Suicide is on the rise.  So they say.  Why?  I honestly think part of it is due to life today, a lot of it is do to more honest reporting. I think we are finally realizing what a fucked up world this can be for people.  So what to do?

We mourn.  We analyze.  We question. We discuss. We plan.  Then we act, and keep acting. We cry for the pain of those gone and we weep for the pain those currently on this path feel.  It’s awful.  It’s hurtful. They feel so empty and heavy. We need to judge what the causes are. Is it the situation?  Genetics?  Or a multitude of things.  Ask why it is happening, where it is happening, what is going on.  Discuss it with them.  Plan with them how you are going to interact.  Are you a sounding board?  A shoulder to cry on?  Or maybe their wingman?  Then do it.  Get up everyday and do it.

I am sad for my son.  I have racked my brain on how to figure out what is wrong.  It is rarely one thing.  I’ve questioned him.  A lot. We always talk.  You know what?  He tells me when he is feeling suicidal. We discuss it.  We talk about ways to fix this.  It is a long hard road.  Sometimes it’s painful for both of us. Still, I act.

At the end of the day, my actions account for something.  It helps.  It doesn’t always cure the problem, but it can lessen it.  There has been a lot of advice to reach out and talk.  Yes, do that, but know that that isn’t everything.  Don’t blame yourself.  Don’t blame the person suffering.  It just happens.  It’s a daily struggle that you have to adjust to.  Just know you can adjust.  The person suffering can adjust.  Life can go on.  It’s okay, that life isn’t this spectacular extravaganza it’s supposed to be.  It can just be getting up, doing what is required, and going to sleep.

You are going to feel pain.  It’s normal.  Sadness. Normal. Anger. It’s supposed to be there.  That is what I wish I could tell Anthony Bourdain and Kate Spade.  You cannot have the bitter without the sweet.  You will never enjoy love, passion, joy, or excitement without it’s polar opposite.  One cannot exist without the other.  That is the hit that depression gives you.  It tells you all you can feel is pain.  There is nothing else.  Then media and the general population tell you all you can feel is joy. It is maddening.

I tell my son, the next day is a new day.  It will get better. “How mom?” he says.  “How is it going to get better?” Some days I have a great answer.  Some days I can only say, “We will make it better together.” And we will.  For I will always be there for him. Even in the deepest darkest hour. Not everyone has that.  Did Bourdain or Spade? I don’t know.  What I do know is you need someone.  Every one does.  Now is the time to think who is yours?  Now is the time to think if you can be someone else’s.  It won’t be easy. Life never is, but you can have the sweet again.  I wish I could have told Anthony and Kate that.  I can’t.  I am, however, telling you.  Remember that.

I would like to end with a quote from Joan Rivers.  It was for her Emmy acceptance speech.  Her husband died from suicide.

“My husband Edgar Rosenberg said “You can always turn things around.” except for one terrible moment in a hotel room in Philadelphia when he forgot that.”

You can turn things around.  Remember that.

 

*I hope you were able to get some food for thought form this post. Please note, that when I write posts that are emotional or difficult for me I do not proof them.  I just spill things out.  If you find mistakes, sorry.

 

 

 

Family

Update, Part 5. My son’s struggles with anxiety and depression.

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While in PHP (the partial hospitalization program) we would get a sheet home at the end of the day.  On it, they score E on his participation in each element of the program each day.  Sometimes he didn’t participate.  Other times he was crying or upset.  Sometimes he did a great job.  A typical 11 year old. I wrongly assumed that they were working on getting him to participate.  They were the experts right?

On one of the last days before discharge we were brought in for family therapy. To be honest there was not therapy.  It was just talking, a Q and A. They told us that discharge was happening in a week and we needed to make other arrangements. They then proceeded to list what we should be looking for.  I could only think “Why didn’t you tell us he would need more therapy when he first started.”  Programs for children his age are few and far between. When you find one to take him, the waiting list is usually weeks long.  What to do?

We (the school district and I) decided to start E back to school on a partial day.  We would then work up to a full day.  I did alert the school that he had not received a lot of therapy and coping skills.  I was hopeful that by the end of the school year in early June he could go to class for three hours.

The first day we got into the building and sat in the office for the third period.  I congratulated him. I asked him if maybe he could try five minutes of class the next day.  We got back to  school the next day and he made it to class for third hour.  The teacher said he did great.

I was so pleased.  I was sure that he would go again tomorrow. Tomorrow came and E was so nervous.  He didn’t want to go to school. I was able to get him there. We go inside and for twenty minutes we are in the main office.  I try to encourage him to go to class.  He has a meltdown. So we sat in the office with him clinging to me and whimpering.  We left early.  The day after he refused to go at all. I was able to convince him to let me drive him to the parking lot and we would sit in the car. So we did the care for 15 minutes.

The next day we increased our car in the parking lot time to 25 minutes, then so on.  When the next week came we started going into the building and sitting in the counseling office.  First for 5 minutes again and then the rest of the time in the car.  I also did the increase as this week went.

We also found time to sign E up for next year. He chose computer classes for his elective.   I am hoping he will be attend class. He has now been able to sit in the counseling center for the entire 3rd period.  He has been able to do it for 3 days in a row.  For the first 2 days, he had panic attacks at the end of the time.  He wanted to leave, but I wouldn’t let him.  He finally was able to get a hold of his anxiety. I am hoping if we can still go next week.

Next week, we are going to an intake meeting for a new day treatment program.  It should be a half day program in the Summer.  I’m not sure what good it will do.  It is with a different counseling center than what we have been dealing with. I hope it will be helpful.  I feel like he hasn’t gotten any help yet.  We were told by the PHP that this is a step down in care.  I’m not sure. He hasn’t had any care yet and I am concerned.  If they enroll him right away we will not be able to try to go to school again.

There isn’t much time left.  School is ending soon.  I had hoped to be further along in his recovery from  anxiety and depression. I just have to take it as it comes.  I would prefer things to be more planned.  I’m not able to plan too much as I have to rely on other people. (doctors/therapists)

I did send some flowers to E’s case manager/teacher.  She has been super helpful. I have always been amazed how accommodating the school has been.  It is a complete difference from my experience with his elementary school. I’m really grateful that they have been so accommodating.  The stress would have been so much greater than if they were not helpful.

I have also made the decision to break ties with E’s old therapist and have gotten him a new one.  I told my son the new therapist is closer to home. Which is true, but not the main reason.  We really have to see more concrete effort.  It has been months and he has gotten worse. I have high hopes for this new therapist. It will take E awhile to warm up to them.

I have also arranged tutoring for E this summer.  So he will be caught up academically by next year.  We also went back to see his old Psychiatrist.  The Psychiatrist said he would increase E’s medication slightly but he is concerned that he hasn’t made any progress.  So I told him about the new therapist and other things.  I also created a plan to help him for the summer.  I am hoping that it will help him overcome his anxiety and depression.  I am hoping he can make it next year.  I only have 3 months to help him.

There are so many things that I need to do in regards to E. I can only do so many things at once.  The big thing is to get him in control of his anxiety and depression.  After that is done I can address other things.

 

 

 

 

 

Family · Uncategorized

What’s going on, in May. Part 4.

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What is going on now.  Things are still stressful. I’m still physically and mentally exhausted. Honestly, I am so angry over the last two months.  I am really angry at the mental health clinic that has been treating my son in one form or another.  Where to start?

If you remember from my last update, we were trying to get E tutoring from the school district. We were able to secure tutoring for E after school. A teacher would come after school for an hour each day.   Fortunately, my son really liked his tutor.  They covered several pages in his math book.

As I also said in the last update post E was on the waiting list for the PHP he last attended.  While we were waiting I was able to get E twice weekly therapist appointments. We also started him on his third medication.  We are seeing a slight improvement in him.  I fear that his dose is too low.  Unfortunately, with children you cannot increase as fast as in adults.  It’s an extremely long road. I’m still exhausted and depressed myself.

After having the tutor over to our home for one week when I get a phone call.  It is the PHP (partial hospitalization program).  They have a spot for E.  He can start the following week.  Ugh.  Of course, when I got the tutor up and going he would get into the PHP.  I am hoping that he can get some coping skills this time. I am hoping he will talk about hurting himself less.

For the first couple of days back at PHP E is sad.  His friend Johnny would not be there and he missed her.  I can’t lose any more friends he would cry to me.  E has lost a large number of friends in his short life.  All of them have moved away.  I count about 6 or 7 friends  who moved.  E is very, painfully shy.  While he makes friends easily he also feels their loss deeply. My son is a nerd, polite, shy, self conscious, friendly and helpful.  Many kids have said so.  Even though in PHP there are different rules than outside.  You can’t be in contact with people from the group.  I’m sure it had to due with confidentiality and safety.  How do you explain that to an 11 year old?  I tried to tell him it was not about him or his friends.  This was the rules for everyone.  Even with that it caused him so much pain.

This time round he made another friend named S. S likes video games and anime like E does. She has also got him into drawing.  I have tried for years to get my son to do artistic things. It’s not his thing.  Until now.  I’m glad he loves drawing like I do. I know he missed S.  They are very much alike.  I’m sad that he has to deal with another loss.

In about four days after he started back at PHP I get a phone call from his social worker. “We think E is doing great.”  “He is not acting like he did before he went into lockdown. We think we may discharge him” she said.  Huh?  He hasn’t even been there a week.  He has anxiety through the roof, crying fits and talks about hurting himself.  To that they said “He isn’t doing that here.”  All I could think is of course he isn’t. He doesn’t want to go back to lockdown.  It’s one of his major fears.  He is terrified of being taken away from us again.

Here’s the kicker.  Our insurance doesn’t want him discharged!  Never had an insurance company want a person to have more treatment. The staff at the PHP is thinking that he should go to a special academy or day treatment program.  They told us to start investigating them.  We have no idea how to start. We do know of one academy. However, it’s over $30,000 a year.  Kiss retirement and college goodbye.  I also don’t think that pulling him out of school for a year to attend school at a day treatment program or special academy is the answer.  If anything it would cause him more harm. He could also lose many of his friends.

To be continued…

 

Family · Self

The Last Part… To Be Continued Pt. 3

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When my phone rang on a very windy, snowy weekday I expected to hear my son on the other end crying or begging me to come.  It wasn’t.  It was one of the therapists telling me they were going to discharge my son from the program. What?  It was only five days! We removed him from another program track to get him into this one. I have no place to put him.  So my husband drove the hour to go pick him up in a winter snow storm.  Two hours later my son was home.

They told us he did not have an eating disorder.  We couldn’t believe it. All the previous therapists told us how sick he was.  This facility said that although his BMI is less than 15, his weight is in the 50th percentile.  So he doesn’t qualify for weight restoration.  In addition, they said they were doing more harm to him than good.  His anxiety and depression ramped up lot.  He was still talking about suicide. They felt he would only be more damaged if they continued.  So he is now home, not in school.  I have been rushing to try and find a new place for him.  He really hasn’t had enough therapy to make much of an impact. I feel like we wasted more than a month for nothing.  It didn’t help him one bit.  So frustrating!

I immediately got him on the wait list for the last PHP (Partial Hospitalization Program) he was in.  There are over 20+ children a head of him.  He may not get in till summer.  In the meantime, he is not in school.  So I have him seeing his regular therapist twice a week and his psychiatrist every month.  We are also once again changing his medication.  As of tomorrow,  he will be on his third med so far.  I hope this one works. We are a bit desperate for something to work.

I have also contacted his school district about enrolling him in his school. We are trying to get him home bound instruction now.  It’s where a tutor will come to the house to help him catch up. He is behind since January.  I hope we can get him caught up.  Fortunately, he is very intelligent.  The classes that matter are Math, English, and Science.  So those we will be working on.  Getting home bound, they told me takes time.  I just want to pull my hair out.

I will be meeting with some teachers and advisors from his school to discuss his IEP on Tuesday.  I will have to see where we are then. I also need to get tutors for the summer.  I also need to make sure our therapy is the best it can be. So much to do with no clear direction to relief.